This paper is in the following e-collection/theme issue:

Health and Risk Communication (45) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1641) Peer-to-Peer Support and Online Communities (636) Infoveillance, Infodemiology, Digital Disease Surveillance, Infodemic Management (1041) Infodemiology and Infoveillance (1349)

Published on in Vol 4 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/46693, first published .
The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

Authors of this article:

Emily Pearce1 Author Orcid Image ;   Hannah Raj2 Author Orcid Image ;   Ngozika Emezienna1 Author Orcid Image ;   Melissa B Gilkey3 Author Orcid Image ;   Allison J Lazard4 Author Orcid Image ;   Kurt M Ribisl3 Author Orcid Image ;   Sharon A Savage1 Author Orcid Image ;   Paul KJ Han5 Author Orcid Image
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