This paper is in the following e-collection/theme issue:

Health and Risk Communication (43) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1552) Peer-to-Peer Support and Online Communities (592) Infoveillance, Infodemiology, Digital Disease Surveillance, Infodemic Management (1010) Infodemiology and Infoveillance (1269)

Published on in Vol 4 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/46693, first published .
The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis

Authors of this article:

Emily Pearce1 Author Orcid Image ;   Hannah Raj2 Author Orcid Image ;   Ngozika Emezienna1 Author Orcid Image ;   Melissa B Gilkey3 Author Orcid Image ;   Allison J Lazard4 Author Orcid Image ;   Kurt M Ribisl3 Author Orcid Image ;   Sharon A Savage1 Author Orcid Image ;   Paul KJ Han5 Author Orcid Image
Article Authors Cited by Tweetations (14) Metrics

Emily Pearce   1 , MPH, PhD ;   Hannah Raj   2 , BSc ;   Ngozika Emezienna   1 ;   Melissa B Gilkey   3 , PhD ;   Allison J Lazard   4 , PhD ;   Kurt M Ribisl   3 , PhD ;   Sharon A Savage   1 , MD, PhD ;   Paul KJ Han   5 , MD, PhD

1 Division of Cancer Epidemiology and Genetics, Clinical Genetics Branch, National Cancer Institute, National Institutes of Health, Rockville, MD, United States

2 Team Telomere, Coeur d'Alene, ID, United States

3 Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States

4 Hussman School of Journalism and Media, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States

5 Division of Cancer Control and Population Sciences, Behavioral Research Program, National Cancer Institute, National Institutes of Health, Rockville, MD, United States

Corresponding Author:

  • Emily Pearce, MPH, PhD
  • Division of Cancer Epidemiology and Genetics, Clinical Genetics Branch
  • National Cancer Institute
  • National Institutes of Health
  • 609 Nelson St
  • Rockville, MD, 20850
  • United States
  • Phone: 1 9196992547
  • Email: emily.pearce@nih.gov